Chapter 4: What is CMT

So CMT is the diagnosis Teddy got, but what in the actual does that mean? 

Well from what I have gathered and learned CMT is a hereditary condition that affects the peripheral nervous system, mainly in the feet and lower legs and hands and upper arms, but there are many different variations, and different ways CMT may become present in your genetic code. CMT is the most common of the neuropathy disorders affecting 1 in 2500 people.  So let's go through some of the ways it can be passed down and some of the different variants.

CMT can be and is usually passed from parent to child.  This can mean that one parent may pass on the mutated gene to their child, this is in a autosomal dominant.  Another way is both parents have an abnormal gene which causes the mutation of the gene in the child, thus in a recessive fashion.  You can also get CMT inherited in a X linked way, so the gene is located on the X Chromosome.  You can also have no apparent history of CMT in your family and the ge…

Chapter Three: Visiting the Neurologist

Teddy has what the Physical Therapists called drop foot. When you google drop foot the three main causes are cerebral palsy, muscular dystrophy and diabetes. I was certain that cerebral palsy was not his condition, I was pretty certain diabetes wasn't either, but not 100% certain and most muscular dystrophies, the most common ones anyway, don't present until age 4 and Teddy had been like this since he was walking at 18 months. But it was still terrifying.

We received a letter from the Glenrose Rehabilitation hospital in Edmonton just after Valentine's day, they stated it would be approximately 4 month waiting period before Teddy would be seen by the neurologist there.  My only concern was 4 months away was June or July and I wanted to make sure he was seen before the doctors took their summer holidays. 

My phone rang with an Edmonton Number on February 21st.  It was the Glenrose and they wanted to book Teddy's appointment, they had February 28 or March 13th available. …

Truthful Tuesday: Finding Supports

It is so important that people find the right supports for them. I will often use my natural support system but I have troubles telling some people my troubles and I really struggled with telling a lot of people in my natural support circle about my troubles.

This happened for two reasons, I couldn't or wouldn't identify what I felt was the problem.  My marriage being in a terrible place was devastating, so many things about my marriage seeming to fall apart and me being in a constant state of unhappiness was eating away at me, I didn't want to face it and it seemed shameful that I had let my relationship get this far.

That feeling of shame is terrible to have to go through, I wasn't the only guilty party in this, and try as I might I couldn't get my husband to engage with me in a productive manner.  Could I get him to get upset and angry, sure I am good at provoking him, but this is not effective. 

I think the other part is, you see people on Social Media and they…

Chapter 2: Physical Therapy

While we were in Nova Scotia, we told people we had to leave by a certain day because of this upcoming appointment, which was true, we did need to make it back.  There was a doctor there and he kept telling me nothing was wrong he seemed fine with his walking, but I felt he'd say whatever he needed to have us stay another day or two.

The trip to Nova Scotia was wonderful, my boys were great and they played and frolicked and made so many memories! But then we came home and it was back to reality.

While waiting to see Dr B, Leigham and Teddy brought me all the children's books in the waiting area to read.  Some of those books are super old and you can tell from their content that they were written in the seventies. I almost felt scandalized reading one book. I wish I could remember it better to put the title in this blog. Finally, they led us back to the patient room.

"Ah, how is everyone today," Dr. B greeted as he came in.

"I'm bored," moaned Leigham ha…

Chapter 1: Why are his feet curling like that?

I loaded the boys into my white Dodge Caravan, buckling Teddy into his seat and telling Leigham to buckle up in his booster seat.  It's a fight most days, because Leigham goes in the door that Teddy's seat is beside and Teddy gets upset but today they know they are going to see the Chiropractor, so today they are happy to comply.  Usually, the chiropractor is just a mommy thing so for them it's a treat.

Driving through Red Deer is quick, the Chiropractor is downtown by the Safeway and takes about ten minutes.  Traffic is light this July morning since it's one, summer and two, after  nine.  We arrive at the Chiropractor and I take the boys in, holding Teddy's little hand tightly and we walk and he stumbles over the air.

"Come on Teddy, get up," I chide as he stumbles again, his walking has always been this way, it's like he doesn't know how to lift his toes over the cracks.  One day I fear I am going to wrench his arm out of his socket when he fal…

Truthful Tuesday: Depression and Disengagement

I would say a lot of my feelings were from a longing to feel loved unconditionally and I felt I was missing that so my homesickness and increased desire to see my friends and family had to do with a lack of feeling loved in my own house.  I am in no way saying this is what was happening on my husbands side, but because we had let Silence become a bedfellow in our marriage we couldn't see or hear the others cries for love.

This disengagement happened over a long time, and it was both of us.  I am a talker, and I like to talk out problems and I can be a visionary where I see where we need to be but I don't always have a clear path to get there so I tend to just bulldoze my way through.  My husband is more of a thinker, he doesn't always know how and he doesn't like to express his feelings, he likes to think them out and then find a path to a solution.  The problem is I would overwhelm him with my communication and then he would stonewall me and not engage with me and wou…

Six on Saturday: Six Charities I'd like to work with this year.

I've decided this year that I want to show my boys about giving back to others.  So I have been looking into charity organizations that we can work with as a family.

1) Ronald McDonal House: I think this would be an awesome opportunity for my boys to give back to families that are going through a terrible time and this way they can help out.

2) Women's Shelter: this one is more of donating some things to the Women's shelter to help my boys understand that everyone needs help from time to time and that it is important that you treat everyone as you wish to be treated.

3) Parkland CLASS: This is an easy one for me, I love helping out my old employer, I believe they do good things for the people they serve and I like to have my boys help out with their carnival so they understand that just because someone has a disability it doesn't mean that you have to be afraid of them or treat them differently than you would treat anyone else.

4) The Mustard Seed: This organization pr…