Showing posts from 2018

Chapter 4: What is CMT

So CMT is the diagnosis Teddy got, but what in the actual does that mean? 

Well from what I have gathered and learned CMT is a hereditary condition that affects the peripheral nervous system, mainly in the feet and lower legs and hands and upper arms, but there are many different variations, and different ways CMT may become present in your genetic code. CMT is the most common of the neuropathy disorders affecting 1 in 2500 people.  So let's go through some of the ways it can be passed down and some of the different variants.

CMT can be and is usually passed from parent to child.  This can mean that one parent may pass on the mutated gene to their child, this is in a autosomal dominant.  Another way is both parents have an abnormal gene which causes the mutation of the gene in the child, thus in a recessive fashion.  You can also get CMT inherited in a X linked way, so the gene is located on the X Chromosome.  You can also have no apparent history of CMT in your family and the ge…

Chapter Three: Visiting the Neurologist

Teddy has what the Physical Therapists called drop foot. When you google drop foot the three main causes are cerebral palsy, muscular dystrophy and diabetes. I was certain that cerebral palsy was not his condition, I was pretty certain diabetes wasn't either, but not 100% certain and most muscular dystrophies, the most common ones anyway, don't present until age 4 and Teddy had been like this since he was walking at 18 months. But it was still terrifying.

We received a letter from the Glenrose Rehabilitation hospital in Edmonton just after Valentine's day, they stated it would be approximately 4 month waiting period before Teddy would be seen by the neurologist there.  My only concern was 4 months away was June or July and I wanted to make sure he was seen before the doctors took their summer holidays. 

My phone rang with an Edmonton Number on February 21st.  It was the Glenrose and they wanted to book Teddy's appointment, they had February 28 or March 13th available. …

Truthful Tuesday: Finding Supports

It is so important that people find the right supports for them. I will often use my natural support system but I have troubles telling some people my troubles and I really struggled with telling a lot of people in my natural support circle about my troubles.

This happened for two reasons, I couldn't or wouldn't identify what I felt was the problem.  My marriage being in a terrible place was devastating, so many things about my marriage seeming to fall apart and me being in a constant state of unhappiness was eating away at me, I didn't want to face it and it seemed shameful that I had let my relationship get this far.

That feeling of shame is terrible to have to go through, I wasn't the only guilty party in this, and try as I might I couldn't get my husband to engage with me in a productive manner.  Could I get him to get upset and angry, sure I am good at provoking him, but this is not effective. 

I think the other part is, you see people on Social Media and they…

Chapter 2: Physical Therapy

While we were in Nova Scotia, we told people we had to leave by a certain day because of this upcoming appointment, which was true, we did need to make it back.  There was a doctor there and he kept telling me nothing was wrong he seemed fine with his walking, but I felt he'd say whatever he needed to have us stay another day or two.

The trip to Nova Scotia was wonderful, my boys were great and they played and frolicked and made so many memories! But then we came home and it was back to reality.

While waiting to see Dr B, Leigham and Teddy brought me all the children's books in the waiting area to read.  Some of those books are super old and you can tell from their content that they were written in the seventies. I almost felt scandalized reading one book. I wish I could remember it better to put the title in this blog. Finally, they led us back to the patient room.

"Ah, how is everyone today," Dr. B greeted as he came in.

"I'm bored," moaned Leigham ha…

Chapter 1: Why are his feet curling like that?

I loaded the boys into my white Dodge Caravan, buckling Teddy into his seat and telling Leigham to buckle up in his booster seat.  It's a fight most days, because Leigham goes in the door that Teddy's seat is beside and Teddy gets upset but today they know they are going to see the Chiropractor, so today they are happy to comply.  Usually, the chiropractor is just a mommy thing so for them it's a treat.

Driving through Red Deer is quick, the Chiropractor is downtown by the Safeway and takes about ten minutes.  Traffic is light this July morning since it's one, summer and two, after  nine.  We arrive at the Chiropractor and I take the boys in, holding Teddy's little hand tightly and we walk and he stumbles over the air.

"Come on Teddy, get up," I chide as he stumbles again, his walking has always been this way, it's like he doesn't know how to lift his toes over the cracks.  One day I fear I am going to wrench his arm out of his socket when he fal…

Truthful Tuesday: Depression and Disengagement

I would say a lot of my feelings were from a longing to feel loved unconditionally and I felt I was missing that so my homesickness and increased desire to see my friends and family had to do with a lack of feeling loved in my own house.  I am in no way saying this is what was happening on my husbands side, but because we had let Silence become a bedfellow in our marriage we couldn't see or hear the others cries for love.

This disengagement happened over a long time, and it was both of us.  I am a talker, and I like to talk out problems and I can be a visionary where I see where we need to be but I don't always have a clear path to get there so I tend to just bulldoze my way through.  My husband is more of a thinker, he doesn't always know how and he doesn't like to express his feelings, he likes to think them out and then find a path to a solution.  The problem is I would overwhelm him with my communication and then he would stonewall me and not engage with me and wou…

Six on Saturday: Six Charities I'd like to work with this year.

I've decided this year that I want to show my boys about giving back to others.  So I have been looking into charity organizations that we can work with as a family.

1) Ronald McDonal House: I think this would be an awesome opportunity for my boys to give back to families that are going through a terrible time and this way they can help out.

2) Women's Shelter: this one is more of donating some things to the Women's shelter to help my boys understand that everyone needs help from time to time and that it is important that you treat everyone as you wish to be treated.

3) Parkland CLASS: This is an easy one for me, I love helping out my old employer, I believe they do good things for the people they serve and I like to have my boys help out with their carnival so they understand that just because someone has a disability it doesn't mean that you have to be afraid of them or treat them differently than you would treat anyone else.

4) The Mustard Seed: This organization pr…

Friday Five: Top Five Marian Keyes books to read!

I am a huge fan of Marian Keyes!! I own all her books and I follow her on social media, I brag about her writing to everyone who will listen! She is amazing and if you haven't read her before here are my favourite Marian Keyes novels and a brief summary of them for you to try!

1) Angel: Taking a holiday in Los Angeles to get away from the doldrums of life, the antics our protagonist gets up and the realization that the grass isn't always greener

2) Watermelon: What do you do when your husband announces he is leaving you on the labour and delivery bed?  What do you do when you realize its true and not some terrible bad dream?

3) Anybody out there: *This is an ugly cry book* Dealing with life after a tragedy, how one foot in front of the other isn't always the fastest way but it is a steady pace.

4) Rachel's Holiday: Life of fun and games, no responsibilities until your family tells you, you have a problem, then it's how do you keep yourself through the embarrassment…

Date Night with Prince T

A new strategy we are employing as a family this year is to buy our children less stuff and spend more of doing things with them!! BEST! IDEA! EVER!

So for Christmas we told all our family to only buy them activities or passes to things we could do, like movies, Jump 360, Treehouse, the zoo, Royal Tyrell Museum, things we could do make a day or evening out of that the kids would build memories and maybe stop wanting so many things.

Adrian took Lil Man to his Rebel's Game and I got to take Prince T!  It was such a fun night! He had so much fun and it was nice to get out with just him! 

Here are some of our pictures from that night!
 Waiting for Dad to get home so he could take mom out on a date!  Pre Date Selfie!! Date Selfie, mom was also getting a massage!!
Best date Night!!

Wondering Wednesday! Family engagement

In my latest reading we read on different strategies to use to engage families of elementary school children, they ended the module with this question.

List and describe three strategies found in the readings that can support families in helping their children's learning in elementary school. What are the implications for your own actions, strategies, and/or practice?

The three strategies I would like to focus on and bring more into my teaching arsenal include guided teaching for parents of specific skills for their children (APTT), home visits, and purposeful, meaningful and consistent communication home with parents. 

These three strategies were shown to be highly effective. It tears down that we versus them mentality and the whole idea that they should "know" what to do because it's elementary type school work.  These strategies would be super helpful to me as a parent because my child is in French Immersion and I don't speak French fluently.  So to be able to go…

Truthful Tuesday: When I knew it was time to get help

I like to spend time in the state of denial.  I like to find other things to blame how I am feeling, saying I'm homesick, that I miss my friends, my family, I need a break from life, that work is stressing me out.  I do, I spend a lot of time in denial, not wanting or not able to address the elephant in the room.

By now we are in the Christmas Season, by now we are getting to the most wonderful time of the year,  and yet my Christmas spirit this year was at an all time low.  We do Elf on the Self with our kids, and I just didn't care.  All I wanted was to plan to go to Saskatchewan for part of the Christmas break and have my husband fly out to meet us for New Years.

Then our puppy Sasha had to go to the vet, she fell down one morning and wouldn't get up, it was extremely scary.  My husband likes to live in denial about our pets and will often say that we have a lifetime warranty with them, I know it's a joke, but Sasha is nine this year and she's getting to her top…

Happy Family Day!!

Happy Family Day Everyone!!

Weekend Update

I am struggling with this post.  I just don't know what to include in it.

I have made it to the gym once this week, and I played soccer once this week, which is totally not on track for my goal, and my eating was better, there were no chips, chocolate bars or unhealthy snacks.

I've been moving a lot during the day getting my steps in (I have gotten 8000 steps each day and some days I've doubled that).

The weirdest thing is that my wake up is 5 am every morning! This is completely nuts because I had set a goal to be up at 5 so I could go work out, but when I first set that goal it wasn't happening, I could set alarms and they'd go off and I would want to die.  So I said nope, morning workouts aren't going to work for me.  And now that I've cut the 5 am wake up, I'm up at 5am.  I just fear that if I start using this and try to get up at 5 and go to the gym I'll have a hard time waking up!

I did lose another pound, and no I am not looking for it! hahah…

Six on Saturday #2: Six things I just can't toss

I have a few collections in my life and some of them are fairly pointless, while others, they are super important to me.  Not everything I have on this list is part of a collection but some things are.

1. My Carebears.  I love the carebears! They are adorable and cuddly, and I bought a lot in the early 2000s when they were re-released.  Currently, they are in a duffle bag downstairs and will be given out to my future grandchildren or grand nieces/nephews.

2. I have some old jewelry, I NEVER wear it, and it's in a draw of one of my jewelry stands to be taken away and sold, yet I look at it and every time I am like nope, I'll do that later.

3.Hockey cards from when I was a teenager.  And I don't even just mean those hockey cards that might be worth something, I mean all of them, and there are even some baseball cards.  They have moved everywhere with me and I don't even look at them anymore yet I keep them.

4. Old Journals, this one might be normal, but I have so many ol…

Friday Five: Sorry guys this one is not of the happiest nature

Today I am going share with you five images in the media that have given me pause, five images that show something more in them each time I look at them.  This post is mostly starting off because of the Florida School Shooting, seriously, another school shooting in the states.

Is anyone really surprised?

1)This is the image I remember seeing back when Columbine happened.  An event so shocking and out of the norm that just seeing the grief on these kids faces, people roughly my own age, I would think that once they could vote they would want something to change, a Columbine law brought forth to protect schools from needless violence.  No one knew what to do back then, and bak then it was two shooters, taking revenge on those that they felt had bullied them, does not make what they did right, but it definitely brought things to discuss, and after Columbine, bullying was a huge topic in all schools.
2) Who remembers Sandy Hook?  Yeah we all do, and I really take offence to anyone who say…

Winter Activities with the boys

I spent most of my life growing up in the prairies and it would not be unreasonable to assume that I would learn to love some winter activities.  And to be complete honest I do like to go skating, skiing (cross or downhill) and sledding but I have NEVER liked the cold.  I just hate being cold, I hate ski pants, mostly because I don't have any that actually fit me, and winter activities like skiing are so expensive if you don't have the equipment.  So I've always struggled to find things to do with my boys in the winter.

 Lil man is easier, he loves hockey and skating, so even if it's -20 he is happy to go out for a bit and skate it up, often I am sitting in the vehicle trying to warm up before he's even considered that it's time to come off the ice. 
 But sledding and skiing haven't been something Lil man has ever wanted to try, and when he learned to skate, Prince T was born so only one of us (his parents) could go skate with him and usually dad did that …

Wanderlust Wednesday: Alcatraz

I'm going to have two different posts on Wednesdays, some Wednesday it will be Wanderlust, about places I have travelled and done.  And sometimes it will be Wondering Wednesdays where I answer a question I have had and the answer I have found to that question.

Today I'd like to share about my trip to Alcatraz!! In complete honesty, I have never in my life been to Alcatraz, two or three times we've talked about and tried to plan to go, but we didn't realize how far in advance you would have to buy tickets so we've done other things instead.  In November when I went to the states I told Alex that the only thing on my list of things to do besides visiting everyone I could was to go to Alcatraz.

Alex booked the tickets, I let my cousins know when we were going and then a whole group of us got on the Ferry and headed to Alcatraz.

Talk about a place that has a vibe to it, there is an energy at Alcatraz unlike anything I have really experienced before, and the feeling hit…

Truthful Tuesday: Further signs of my depression

Yesterday, I blogged about my trip to California, it was a great trip, but I went on that trip because I felt an emptiness in my soul, and I couldn't place where it was coming from.

I felt that maybe I was burned out, maybe I was overly stressed and needed to take a time out.   A time out from my life, and maybe the best way to do that was to go somewhere that was like home, but wasn't my home.

So I looked into flights, and found a cheap one for the fall break down to San Fransisco.  I sent out messages to everyone I knew in San Fransisco area and we made plans to meet up.  It was great to see everyone and I don't regret the trip, not one bit.

While on this trip I had a great visit with so many people that I love, that I connect with on a whole different level. Who I know I can share things about my life with them and there is absolutely no judgement and no suggestions for how I should do things. They only listen and allow me to talk out my thoughts until I find my soluti…

California Trip 2017

Way back in November during the fall break I jumped on a plane solo and flew to visit friends and family in California. I hadn't been back to California since my wedding, so this visit was long, LONG overdue. 

It was a great flight, it was on the smallest plane ever, I think there were a total of 12 rows so we were all in coach, but I was in row two so that was super nice and I was able to read and disconnect from everything around me for awhile.

Upon arriving my California Sister, Alex picked me up from the airport.  It was my first time meeting her husband Ethan and her two young sons.  They were amazing and felt like I'd always known them, and Alex and I got to catch up.

The next day I headed out to see my dad's grave site.  That was a definite bitter sweet moment for me, I realized that having my dad interned so far away from me, limited my ability to seek out his guidance.  That is actually weird to say, because I shouldn't need his resting place to do that, but I…

Weekly Update: Exercise and diet update

This week wasn't my most stellar week.  I struggle with road trip snacks, when I go to Saskatchewan I always end up eating snack food that I buy at the gas station or eating at A & W. I did better this time, I didn't buy a meal from A&W I only bought one bag of chips and it took me three days to drink the bottle of pepsi I bought (I used to drink a 600ml in an hour sitting).  So there were some changes for sure, but it wasn't an amazing turn not.

So Sunday we got home from Saskatchewan so there was very little to no exercise. But I did have booster juice and subway instead of fast food so that was a good choice.

Monday---->Protein shake in the morning, salad at lunch, left overs for supper, left overs consisted of fries, fish and carrots.  Snacks included a protein bar and crispers.
            ---->Played Soccer

Tuesday ---> Protein shake, salad for lunch, I don't remember what I had for supper,  I know that I had greek yogurt, strawberries and vanill…

Six On Saturday: 6 things I can't live with out.

When you go through tough times, it sometimes brings to the forefront those things that make life amazing.  And right now things have not been super great in my life, but there are things that if I didn't have those, my life would suck, and be worse than it is.  So these are the six things I have found keep me ground and keep me from spiralling out into the utter darkness.

1. My family: I have such a great supportive family, they let me bitch, they let me complain and they keep me grounded. I've been blessed with two best friends in my siblings and couldn't imagine not being as close to them as I am.  I've also been blessed with a mother who is my rock and supports me at every decision I make, even when she doesn't agree with me.

2. My friends: For letting me bitch, for letting me cry on their shoulders, for sharing their situations to help me see that I am not the only one to have gone through this and that it might be bad right now but there is another side so I …

Friday Five: Top 5 books I want to read this year.

I have a collection of books on my desk, it's like a mini collection of books I want to read but I just have not sat down and read them.  So I am making it a goal this year to put in the work, time and effort to read these books.

1. The Break.  This is Marion Keyes newest novel and I haven't even started it yet even though I bought it back in November.  I've just always had so many other books to read so I haven't set it in my queue, but now it is.

2.The Power of Now.  This book by Eckhart Tolle, is about living in the moment, living for the now, not the future, not the past but the present.  I've started reading this one, but it asks you to reflect and think about things and I just didn't feel in the right mindset, but I think living in the Now is very important for me especially as I move myself back to being my old happy self.

3. Braving the Wilderness.  Brene Brown's newest book, I love reading her books, and once I am done these five I am going to go b…

Setter's Place Skating Oval

A couple weeks ago I took the boys to meet my brother and his family at the new skating oval.  That was a long day out with the boys because we started with morning hockey, a visit to the library, the skating oval and then a play date.

This was the first outdoor tournament we participated in in 4 years.
The skating Oval was a lot of fun, Lil Man and Mr L skated with uncle, Prince T played in the snow with Auntie and I got to take all kinds of pictures! There was entertainment, and food so it was a good day!  I'm glad my brother told me about it and glad that I went!

 Handsome Prince T
 Lil Man and Mr L
 My brother being all westside 

playing in the snow with auntie

Wondering Wednesday #1: Introduction Post

I've decided that I want to keep my brain moving, and so each week I am going to come up with a question to which I want to find the answer.  This means I get to do some research into subject matter that I am interested in. I'm super excited about some of the questions I am going to answer, and hope you will be too.  I'm hoping to be able to figure out how to have guest bloggers as well so that they can add their own, thoughts, so friends that blog, I could be coming to you!

For the first two posts I am actually going to answer questions from an online professional development course I am taking because I am half way through the course and I have answered some of their questions anyway.

The course is offered from Harvard X on EdX online.  The course is titled Family Engagement, the reason it caught my eye is that I struggle with family engagement in my classroom and I was hoping to find some ways to strengthen my family engagement and build a better school community. So th…