Life's Whirlwind Adventures

We have had our first, of many, Neuro-muscular multi-disciplinary appointments.  We will likely have two a year, and they are a full day of talking with people. We were up early, sent Leigham off to school, then Adrian and I packed up Teddy and headed to the Glenrose in Edmonton.  We lucked out and found parking inside the parkade so we didn't have to walk a million city blocks to get to our appointment. Teddy did ok as well, he walked most of the way through the hospital because that place is a maze.  Our appointment was at 1:30 and we got checked in just in time. Upstairs we went to meet with the team.  After waiting a few minutes we were put into a room which looked out into the playground area.  In hindsight, and really at first sight, this seems like a terrible room to put a 4 year in who only wants to go out and play on the slide and equipment.  We spent more of the appointment telling Teddy he'd be able to have fun somewhere else but he had to co...

May 30 we had our last appointment for awhile, as now we are just waiting for genetic testing to see what turns up and what we will need to do from there.  Our Genetics testing took place at the Stollery Children's hospital in Edmonton. Now my first impression of trying to find the Stollery is that it is VERY DIFFICULT! Google maps doesn't take you to the entrance, and when you try to walk to find the entrance, at least for us, we ended up going in a restricted area that did not get us to where we needed to go. We were in the general location that we needed to be, but for all intensive purpose we were lost. Now my first impression of the staff that work at the multitude of hospitals in this location, because there are many, many hospitals that operate out of this location, the Stollery is only one of them, is that they are AMAZING! In the restricted area we ran into a gentleman who took us through the Staff only area to the main hub and walked us right up to one of the Stol...