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Showing posts with the label Glenrose

Chapter 8: Neuro-muscular multi disciplinary appointment

We have had our first, of many, Neuro-muscular multi-disciplinary appointments.  We will likely have two a year, and they are a full day of talking with people. We were up early, sent Leigham off to school, then Adrian and I packed up Teddy and headed to the Glenrose in Edmonton.  We lucked out and found parking inside the parkade so we didn't have to walk a million city blocks to get to our appointment. Teddy did ok as well, he walked most of the way through the hospital because that place is a maze.  Our appointment was at 1:30 and we got checked in just in time. Upstairs we went to meet with the team.  After waiting a few minutes we were put into a room which looked out into the playground area.  In hindsight, and really at first sight, this seems like a terrible room to put a 4 year in who only wants to go out and play on the slide and equipment.  We spent more of the appointment telling Teddy he'd be able to have fun somewhere else but he had to co...

Chapter Three: Visiting the Neurologist

Teddy has what the Physical Therapists called drop foot. When you google drop foot the three main causes are cerebral palsy, muscular dystrophy and diabetes. I was certain that cerebral palsy was not his condition, I was pretty certain diabetes wasn't either, but not 100% certain and most muscular dystrophies, the most common ones anyway, don't present until age 4 and Teddy had been like this since he was walking at 18 months. But it was still terrifying. We received a letter from the Glenrose Rehabilitation hospital in Edmonton just after Valentine's day, they stated it would be approximately 4 month waiting period before Teddy would be seen by the neurologist there.  My only concern was 4 months away was June or July and I wanted to make sure he was seen before the doctors took their summer holidays.  My phone rang with an Edmonton Number on February 21st.  It was the Glenrose and they wanted to book Teddy's appointment, they had February 28 or March 13th availabl...